So I have an AVM in my brain

I hope it works out for you mate.
Morbid me often thinks about how we ( this forum) are all getting older, and age will creep up on us and along with it the ills that affect people. I wonder about the forumites that have just left the forum for no reason. Ones that have been posting far to long to leave of their own free will, just not posting ever again.

But that's morbid me.

We don't know each other, but you have my wishes. And almost my tears.

I get what you are saying their Mommy. I've had the same thoughts myself. Would we ever know if our friends here were gone. They just stop posting, we don't know why.

That sounds horrible BSA, I hope the treatment is successful for you.

Really sorry to hear that B_S_A. Good luck with everything, especially the gamma knife procedure.

Mommy wrote:I hope it works out for you mate.
Morbid me often thinks about how we ( this forum) are all getting older, and age will creep up on us and along with it the ills that affect people. I wonder about the forumites that have just left the forum for no reason. Ones that have been posting far to long to leave of their own free will, just not posting ever again.

But that's morbid me.

We need JLC. Especially as we will be able to get him on the cheap considering what a nice guy he is.

Wow, that really sucks. I hope this gamma knife works out for you.

B_S_A wrote:Thanks for the love, helps a lot.

$ilva $hadow wrote:Sorry to hear I strolled into this thread expecting the usual 'jolly ho' but its not.

What else can you do but live your life to the best that you can? Take pleasure from the simple things in life? Do some things you always wanted to do, and maybe start saving some cash to help out family if you're truly a goner?

There's no comfort in knowing your death may be coming, so you may as well give up worrying. That's a pretty difficult mental state to get into, but worrying all the time can only be taking a toll on your mental health.

Disliking "goner" They're confident the treatment will work, it's just not a dead cert. It's those five years it takes to seal up that's doing my head in (scuse the pun) and just generally the whole situation is shite. I meant to say that I've already had the treatment, sorry. They won't be able to tell me if it's working or not for a few years though. I'm seeing a therapist now, they seemed shocked that I hadn't seen anyone sooner, but I'm happy that I'm not ignoring it any more.

That's a shame no-one knows anything, but all should be fine in the end, just need to go through the necessary stages I suppose

Well, I think we'll take their confidence that the treatment will work as a good sign, don't you ? It's good that you are seeing a therapist, (when you are finished with them, may I borrow ?!!). Good also that you have already had the treatment so hopefully all that is now out of the way.

So perhaps you are further down the road to recovery than we all thought ? Sure, waiting a few years until you know that everything is ok is going to be very stressful but that's where your therapist comes in, no ??

Again, the very best of luck to you. We all look forward to that day, in a good while yes, when you post that you have been given the all clear. That will be a great post !!

still wrote:

B_S_A wrote:Thanks for the love, helps a lot.

$ilva $hadow wrote:Sorry to hear I strolled into this thread expecting the usual 'jolly ho' but its not.

What else can you do but live your life to the best that you can? Take pleasure from the simple things in life? Do some things you always wanted to do, and maybe start saving some cash to help out family if you're truly a goner?

There's no comfort in knowing your death may be coming, so you may as well give up worrying. That's a pretty difficult mental state to get into, but worrying all the time can only be taking a toll on your mental health.

Disliking "goner" They're confident the treatment will work, it's just not a dead cert. It's those five years it takes to seal up that's doing my head in (scuse the pun) and just generally the whole situation is shite. I meant to say that I've already had the treatment, sorry. They won't be able to tell me if it's working or not for a few years though. I'm seeing a therapist now, they seemed shocked that I hadn't seen anyone sooner, but I'm happy that I'm not ignoring it any more.

That's a shame no-one knows anything, but all should be fine in the end, just need to go through the necessary stages I suppose

Well, I think we'll take their confidence that the treatment will work as a good sign, don't you ? It's good that you are seeing a therapist, (when you are finished with them, may I borrow ?!!). Good also that you have already had the treatment so hopefully all that is now out of the way.

So perhaps you are further down the road to recovery than we all thought ? Sure, waiting a few years until you know that everything is ok is going to be very stressful but that's where your therapist comes in, no ??

Again, the very best of luck to you. We all look forward to that day, in a good while yes, when you post that you have been given the all clear. That will be a great post !!

The likelihood is that this will cure me and I won't have another bleed, and apart from the problems it's left me, I got away with it pretty lightly. Mind you, it was so unlikely to happen the first time, I don't like the odds. I'm annoyed at myself for being annoyed, I should be over the moon that they managed to cure me but I'm not really, I'm just hacked off.

I suppose that's normal though, just working out the kinks and such, it's a bit of an ordeal.

Sounds like a bad situation, but you've had the surgery now and the stuff Ive just read on the (generally sensationalist) interwebs paint a positive picture for the long run.

In the meanwhile, go do some really crazy gooseberry fool while you can get away with it without people questioning

You'll be fine. Would be a horrible thing to have though.

Yeah, you'll be good. You've been through a heck of a lot. You got family/friends who are there for you atm?

gooseberry fool, man. Sorry to hear this. It's weird when something like this happens to someone you "know". Hope all the (badass-sounding) gamma knife stuff goes through.

Also, no offence, but your avatar seems somewhat appropriate.

TimeGhost wrote:Yeah, you'll be good. You've been through a heck of a lot. You got family/friends who are there for you atm?

strawberry floatin' hell Timeghost, he's got enough on his plate without asking his family to go ass to mouth.

Perfectly sensible question.

strawberry float, can you still play poker? Seriously though, it must be of huge comfort that there is something which can potentially put a nice big road block in the way. Medical science is a wonderful thing.

Stay strong, bro.

I hope the gamma knife cures you, and doesn't turn you into the Hulk.

B_S_A wrote:

still wrote:

B_S_A wrote:Thanks for the love, helps a lot.

$ilva $hadow wrote:Sorry to hear I strolled into this thread expecting the usual 'jolly ho' but its not.

What else can you do but live your life to the best that you can? Take pleasure from the simple things in life? Do some things you always wanted to do, and maybe start saving some cash to help out family if you're truly a goner?

There's no comfort in knowing your death may be coming, so you may as well give up worrying. That's a pretty difficult mental state to get into, but worrying all the time can only be taking a toll on your mental health.

Disliking "goner" They're confident the treatment will work, it's just not a dead cert. It's those five years it takes to seal up that's doing my head in (scuse the pun) and just generally the whole situation is shite. I meant to say that I've already had the treatment, sorry. They won't be able to tell me if it's working or not for a few years though. I'm seeing a therapist now, they seemed shocked that I hadn't seen anyone sooner, but I'm happy that I'm not ignoring it any more.

That's a shame no-one knows anything, but all should be fine in the end, just need to go through the necessary stages I suppose

Well, I think we'll take their confidence that the treatment will work as a good sign, don't you ? It's good that you are seeing a therapist, (when you are finished with them, may I borrow ?!!). Good also that you have already had the treatment so hopefully all that is now out of the way.

So perhaps you are further down the road to recovery than we all thought ? Sure, waiting a few years until you know that everything is ok is going to be very stressful but that's where your therapist comes in, no ??

Again, the very best of luck to you. We all look forward to that day, in a good while yes, when you post that you have been given the all clear. That will be a great post !!

The likelihood is that this will cure me and I won't have another bleed, and apart from the problems it's left me, I got away with it pretty lightly. Mind you, it was so unlikely to happen the first time, I don't like the odds. I'm annoyed at myself for being annoyed, I should be over the moon that they managed to cure me but I'm not really, I'm just hacked off.

I suppose that's normal though, just working out the kinks and such, it's a bit of an ordeal.

Sounds like all the stages you are going through are perfectly normal - hell its a massive thing to have to face up to. Don't beat yourself up about it; give it time and allow yourself to work through all the emotions that come along - anger, frustration, whatever - they'll all pass in time. Won't happen overnight - but it will happen in the end !!

Sorry to hear that, it sounds like a pretty scary condition. I'd be bricking it in that position so I think you are doing pretty well under the circumstances. I'm glad the outlook sounds positive.

Clarkman wrote:strawberry float, can you still play poker? Seriously though, it must be of huge comfort that there is something which can potentially put a nice big road block in the way. Medical science is a wonderful thing.

Stay strong, bro.

Clearly not this series

I'm sure that I'm just going through all the necessary stages, and I know that sometime I will have dealt with it. It's just at the moment I'm in the thick of it and really can't see that far ahead. Would be incredible if someone here had dealt with it before is all, everyone's great about it but there's only so much people can understand I think. To be honest though, I'm happy to be around people who aren't constantly moping about it as well.

Yeah I think the key is not to get frustrated, although that does seem impossible at the moment.